Search results for: “Stargardt's”
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2024 AMD Awareness Month Resources
AMD Awareness Month, sometimes also referred to as AMD and Low Vision Awareness Month, was established in 2008 to raise awareness about the national prevalence and impact of age-related macular degeneration (AMD) on individuals, and the rippling effect on their networks of care. In 2024, the state of AMD in the United States remains alarming.…
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Raise Awareness
We look forward to the day that awareness of macular degeneration is as common as other major conditions, such as diabetes, or heart disease. Other than the juvenile form of macular degeneration (Stargardt’s), macular degeneration has several known modifiable risk factors. If you knew you could save your sight for longer, wouldn’t you want the…
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Past Research Grants
*This section is still under construction and does not represent the full list 2022 AMDF Research Grants AMDF Breakthrough Award (for Stargardt’s) To Martin-Paul Agbaga, PhD, Assistant Professor, Department of Ophthalmology, University of Oklahoma Health Sciences Center, to optimize and create methods for efficient delivery of very long chain polyunsaturated fatty acids to the retina,…
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What is Stargardt Disease?
Steven Nusinowitz, PhDJules Stein Eye InstituteUCLA Full Transcript Narrator: (Animation) In Stargardt Disease, a defective protein in photoreceptors results in the accumulation of lipofuscin in retinal pigment epithelial or RPE cells as photoreceptors are shed daily. Lipofuscin is composed of material that is very toxic to RPE cells. The RPE cells become engorged with this…
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Living with Stargardt Disease
Gabriel Travis, MD, Professor of Ophthalmology and Biological ChemistryUCLA School of Medicine Full Transcript Narrator: 11 Year old Meaghan’s parents had never heard of Stargardt and initially thought their daughter only needed glasses. Then they received her diagnosis. Meaghan’s Mom: For us at that point in time it was devastating. It was so difficult to…
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Stargardt Disease Defined
In rare cases–one in 20,000–macular degeneration is diagnosed in children and teenagers. Of those cases, the most common cause is Stargardt disease, named for Karl Stargardt, a German ophthalmologist who first reported a case in his practice in 1901. Sometimes called Stargardt’s disease, Stargardt affects both eyes and develops sometime between the ages of six and twenty, when kids notice difficulties…
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About Macular Degeneration
Macular degeneration is a progressive eye disease that affects the tiny, central part of the retina called the macula at the back of the eye and can cause loss of central vision. It is the leading cause of vision loss in people over 40. According to the World Health Organization ‘s (WHO) 2020 World Vision…